Confused? Join the rest of us

It would appear that my narcolepsy has no simple solution. Although the symptom can occur after radiotherapy it usually happens much sooner. Nobody has an answer to hand. The drug I mentioned in a previous post is probably not an option because, as Charles pointed out, it can be responsible for seizures itself, which is obviously something I do not want to happen. It may also not be freely available for prescription. This is what my doctor told me when she phoned me yesterday evening. Apparently you need a special licence or something to be able to prescribe this. It's all rather a shame, really, as it did seem to offer all the solutions I was looking for.

The other option that's being considered is some form of sleep treatment. That perhaps my breathing during sleep time is not going on properly. So I may be referred to a sleep specialist! Well, I've not seen one of those before and I don't know what it'll involve. I've got my jury duty in 3 weeks so I hope the two fit together properly!

Speed is the word, is the word...

My narcolepsy seems to be getting more frequent. The trouble is that as it starts to kick in, I start to feel a pleasant relaxing wave wander along my body.The attacks themselves vary slightly. Sometimes I can feel it hovering around me and it just takes over, and other times I can just relax and allow it to take over. But in the latter case I know I should take more control. But it's very difficult.

Drug Seekers

My sleep problems do not seem to be improving. For example, even when I think I've had sufficient sleep overnight I'm still having sleep attacks when I'm sitting in the office. Previously I could almost say that the sleepiness occurred in the afternoon and while this wasn't quite right, it was also quite common amongst people generally.

But now my falling asleep syndrome has started in the morning. I will come into the office feeling wide awake and fine and then an hour or so later I start nodding off in front of my screen. I went to the doctor today but she didn't have any helpful solutions. Admittedly, she was a locum and so didn't know my past but even when I tried to bring her up to date there was only so much I could do.

Anyway - we had no solution. She basically suggested that I should wait until I see my neuro (Andy) in late November, when I have my next MRI scan. But that's no good for me. So I've started some searching and I think I've come across a drug that may be the solution. I won't name it yet, but if I manage to get prescribed some, and it does what the various write-ups about it claim, I shall be a very happy person and I will spread the news. In the meantime, fingers crossed.