Saturday, September 22, 2007

It's that smell again...

I had another seizure this morning. Not enough to call the ambulance but still a full-blown epileptic fit. I think it may have been a combination of alcohol and forgetting to take my medication at the right time. I think there must be more than this involved because I've done both of those without fitting but maybe I was just unlucky this time. I hope it's a one-off rather than them coming back again.

But with reference to the title, this seizure was signposted by the strange, strong smell that I experienced just before I had my first fit. An intense smell, like smelling salts in effect, although it didn't smell like that. This time I recognised it before the fit itself kicked in properly. I wasn't panicking but I knew that something was happening. I also felt very strong pins and needles in my hands and tried to say this but was not able to string the words together. It was very annoying. I just said that I wasn't getting frightened or anything, but I couldn't. And that's the last I remember until I came to after the seizure. I spent the rest of the day feeling very tired and slept for a lot of it.

Wednesday, September 19, 2007

Short straw (who got the...)

My neurologist and my neurosurgeon have decided to split responsibilities with regards to me. The neurologist has decided that he will now only be responsible for any seizures I may have from now on.

I forgot to say that I have always been interested in the brain and rate among my favourite writers about the brain: Vilayanur Ramachandran and Oliver Sacks. I told my neurologist this and he told me he hated them. I then told him that I'd just read "The Private Life of the Brain" by Susan Greenfield and he told me he hated her too. My neurosurgeon didn't seem too complimentary about them either. I call it lobe envy.

So - the ologist is looking after fits while the surgeon is looking after MRI scans and beyond.

I am very lucky in that I have private health insurance through the company I work for. But I am also very lucky because the ologist and the surgeon have said that they would be willing to continue looking after me, if the private health scheme decided not to, via the NHS, which is not only comforting but also something I am grateful to the two guys about.

What I'm interested to know is - which one drew the short straw? I have two ways of looking at this; in theory (and, I hope, in practice) the likelihood of me having another seizure is quite low, given the drugs I'm taking. So that would mean less income for the ologist. So he might have wanted a bigger slice of the action. On the other hand, touching all sorts of wood, my tumour might do fuck all for years, in which case the surgeon will only get a relatively low income from looking after me. But I'm sure neither of them are money-grabbing or they would never have offered to look after me on the NHS. So, my only conclusion is that the surgeon is most interested because my particular problem is extremely rare and so he wants to study. But I honestly don't care. They're both decent chaps and as long as they look after my brain that's all that matters.

Next scan - November some time.